I may have to die sooner than planned

Hello, I may be affected (!) by familial Alzheimer's disease. My father died relatively young, at 52. There is a 50/50 chance that it will be passed on. The test to see whether it was familial was never carried out. The disease is incurable and the chances of recovery are currently hopeless. The general tenor is that you shouldn't get tested because it doesn't help and doesn't change anything other than taking away all the joy in your life